Wed Sept 25
Dr. appt today. Had to get blood work done first. Dr. says my blood counts are all in the acceptable range. Yay!! I have lost a total of 25 lbs!! Excited about this. Dr. says some of my weight was tumor weight and now that they are shrinking I will be more comfortable. Yay! My energy is back and feeling good.
Sunday, September 29, 2013
Tuesday, September 17, 2013
Sept 17
Horrible weekend. Sick all day Saturday, vomiting all night long. Sunday sleepy all day. I was hoping by Monday I would be better and could actually go to work.. NOT!!! Monday got up at 11 am after sleeping 15 hrs. and still felt tired.!! Had to go in for some blood work and then they informed me I had to come in Tuesday for more rasburicase.
*Rasburicase is approved for use by the U.S. Food and Drug Administration (and European counterparts) for the prevention and treatment of tumor lysis syndrome (TLS)[1] in patients receiving chemotherapy for hematologic cancers such as leukemias and lymphomas. It is also being investigated for treating severe hyperuricemia from other sources (e.g., gout[2] and other rheumatologic conditions).
Horrible weekend. Sick all day Saturday, vomiting all night long. Sunday sleepy all day. I was hoping by Monday I would be better and could actually go to work.. NOT!!! Monday got up at 11 am after sleeping 15 hrs. and still felt tired.!! Had to go in for some blood work and then they informed me I had to come in Tuesday for more rasburicase.
*Rasburicase is approved for use by the U.S. Food and Drug Administration (and European counterparts) for the prevention and treatment of tumor lysis syndrome (TLS)[1] in patients receiving chemotherapy for hematologic cancers such as leukemias and lymphomas. It is also being investigated for treating severe hyperuricemia from other sources (e.g., gout[2] and other rheumatologic conditions).
It catalyses the conversion of uric acid to allantoin. Allantoin is an inactive metabolite of purine metabolism, and is five to ten times more soluble than uric acid, so renal excretion is more effective. Rasburicase is unique as a treatment and prevention for renal failure associated with TLS in that it catalyses the metabolism of existing uric acid. Other options prevent uric acid formation.*
Got my power port put in at 11am then had to get my infusion of rasburicase. After testing my blood they informed me I have to come in Wed for more rasburicase. UGH!! My uric acid is still too high. At least it doesn't make me sick or tired.
Friday, September 13, 2013
Sept 13
Not such a good day with chemo. I had a reaction to the rixutan. My throat got tight, had trouble breathing, face got all red, blood pressure went up and oxygen went down. A horrible feeling!! They got me stabilized and then we started again but this time at a slower drip. Did better after that just made it a long day. :(
Not such a good day with chemo. I had a reaction to the rixutan. My throat got tight, had trouble breathing, face got all red, blood pressure went up and oxygen went down. A horrible feeling!! They got me stabilized and then we started again but this time at a slower drip. Did better after that just made it a long day. :(
Thursday, September 12, 2013
Sept 12, 2013
Day 1 of chemotherapy. Nothing too eventful. Hooked me up to the IV. Started first with the rasburicase which is to prevent tumor lysis syndrome. Then some anti-nausea med and then finally with bendamustine.
*Bendamustine injection is used to treat chronic lymphocytic leukemia (CLL; a type of cancer of the white blood cells). Bendamustine injection is also used to treat a type of non-Hodgkins lymphoma (NHL: cancer that begins in a type of white blood cell that normally fights infection) that is slow spreading, but has continued to worsen during or after treatment with another medication. Bendamustine is in a class of medications called alkylating agents. It works by killing existing cancer cells and limiting the growth of new cancer cells*.
Feeling pretty good no adverse reactions. Tomorrow Day 2 get to have more anti-nausea meds and some benadryl and then Rituximab.*
*Rituximab destroys both normal and malignant B cells that have CD20 on their surfaces, and is therefore used to treat diseases which are characterized by having too many B cells, overactive B cells, or dysfunctional B cells.*
Day 1 of chemotherapy. Nothing too eventful. Hooked me up to the IV. Started first with the rasburicase which is to prevent tumor lysis syndrome. Then some anti-nausea med and then finally with bendamustine.
*Bendamustine injection is used to treat chronic lymphocytic leukemia (CLL; a type of cancer of the white blood cells). Bendamustine injection is also used to treat a type of non-Hodgkins lymphoma (NHL: cancer that begins in a type of white blood cell that normally fights infection) that is slow spreading, but has continued to worsen during or after treatment with another medication. Bendamustine is in a class of medications called alkylating agents. It works by killing existing cancer cells and limiting the growth of new cancer cells*.
Feeling pretty good no adverse reactions. Tomorrow Day 2 get to have more anti-nausea meds and some benadryl and then Rituximab.*
*Rituximab destroys both normal and malignant B cells that have CD20 on their surfaces, and is therefore used to treat diseases which are characterized by having too many B cells, overactive B cells, or dysfunctional B cells.*
Friday, September 6, 2013
September 5, 2013
I found out my test results today. My CT scan shows some more lymph nodes enlarged in my chest area. There is some abnormal B cells in my bone marrow and in my underarm lymph node. But I don't have any tumors in my lungs or my liver!! Yay! So my official diagnosis is Follicular Non-Hodgkins Lymphoma. I will be starting chemo next week. Then I only have to go once a month. Also told me the treatment they are doing will not make my hair fall out.!! Double Yay! My first treatment will take 2 days total. I also have to get a power port put in to make it easier for blood work and chemo. Exactly how long I will have to do treatment depends on the results, could be 6 months, could be longer. This type of lymphoma is a reacurring type so it is something that will have to be closely watched after treatment.
I found out my test results today. My CT scan shows some more lymph nodes enlarged in my chest area. There is some abnormal B cells in my bone marrow and in my underarm lymph node. But I don't have any tumors in my lungs or my liver!! Yay! So my official diagnosis is Follicular Non-Hodgkins Lymphoma. I will be starting chemo next week. Then I only have to go once a month. Also told me the treatment they are doing will not make my hair fall out.!! Double Yay! My first treatment will take 2 days total. I also have to get a power port put in to make it easier for blood work and chemo. Exactly how long I will have to do treatment depends on the results, could be 6 months, could be longer. This type of lymphoma is a reacurring type so it is something that will have to be closely watched after treatment.
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