Feb 4

This week is treatment #6. Hopefully my last one for  a while.. a long while. Next after treatment I will have to do a ct scan to see if tumors are gone.

Dec 26

Sorry I haven't updated for a while. Just had my 4th treatment 2 weeks ago. 2 more to go.  Been feeling pretty good except for chemo weekend.  I developed a blood clot in my neck about 2 weeks ago and I have been taking a blood thinner and giving myself shots in my stomach. UGH.  My blood is being stubborn and has not been wanting to thin out yet. I have to take the blood thinner for about 3 months.!! I am constantly worried now about cutting myself especially at work where I get a lot of paper cuts. Next chemo treatment is Jan 9 and 10.

Nov 7,

My chemo got canceled today. Went in to see Dr. and my white cell count is too low and my platelets are also low.  So have to reschedule and try for next week.. UGH

Oct 10,11

Thurs chemo went well no reactions.  I had the rituxan (melts tumors) first, no reaction this time!!  Then the bendamustin (kills cancer cells) felt really good after no nausea this time. Only bad side effect was sleeplessness but better then nausea and vomiting...

Fri. Went in expecting it to be all day again like last time but was only there an hour and a half.  Only had to do the bendamustine and thats it!! Yay.  Feeling a little tired after and so far feel pretty good.!!  Gonna make sure I take my anti nausea meds and hope for a good weekend.   Have to go get a blood draw Monday.

Oct. 9

Had some strange side effects lately.  Last Wed. started getting leg cramps that lasted for 4 days. UGH! Now my left elbow is numb and my vision is hazy.  Round 2 of chemo this week on Thurs and Fri.  I feel I am better prepared this time since I know what to expect. Definately taking the anti-nausea meds ahead of time.  Also hoping no reactions this time.

Wed Sept 25

Dr. appt today. Had to get blood work done first.  Dr. says my blood counts are all in the acceptable range.  Yay!!  I have lost a total of 25 lbs!! Excited about this.  Dr. says some of my weight was tumor weight and now that they are shrinking I will be more comfortable. Yay!  My energy is back and feeling good.

Sept 17

Horrible weekend. Sick all day Saturday, vomiting all night long. Sunday sleepy all day.  I was hoping by Monday I would be better and could actually go to work.. NOT!!!  Monday got up at 11 am after sleeping 15 hrs. and still felt tired.!! Had to go in for some blood work and then they informed me I had to come in Tuesday for more rasburicase.

*Rasburicase is approved for use by the U.S. Food and Drug Administration (and European counterparts) for the prevention and treatment of tumor lysis syndrome (TLS)^[1] in patients receiving chemotherapy for hematologic cancers such as leukemias and lymphomas. It is also being investigated for treating severe hyperuricemia from other sources (e.g., gout^[2] and other rheumatologic conditions).

It catalyses the conversion of uric acid to allantoin. Allantoin is an inactive metabolite of purine metabolism, and is five to ten times more soluble than uric acid, so renal excretion is more effective. Rasburicase is unique as a treatment and prevention for renal failure associated with TLS in that it catalyses the metabolism of existing uric acid. Other options prevent uric acid formation.*

Got my power port put in at 11am then had to get my infusion of rasburicase.  After testing my blood they informed me I have to come in Wed for more rasburicase. UGH!! My uric acid is still too high.  At least it doesn't make me sick or tired.